Study findings made accessible

We in the PREDICT-HD study think it's important to share what we've been able to learn about Huntington disease both with the public and especially our research participants, who provide their time, effort and the data that gets collected and analyzed to reach new conclusions about HD. These findings help advance the collective understanding of HD and may help shape future HD clinical trials targeted toward treatment that may slow the progression of the disease or prevent it altogether.

 

IFull journal articles aren't what most consider light readingn the medical research field, findings from studies are most often announced and explained to the public in articles published in medical journals. These articles contain a lot of important information but can often be challenging to understand and lengthy. And there is often a fee or subscription required to read the articles online. We've written the following article summaries of selected PREDICT-HD articles reporting study findings in an attempt to report these findings to the public in a way that's easy to understand and informative. We will post more summaries here as they are written. 

Timing may be off in prodromal HD

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Brain volume predicts Huntington disease onset

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Couples facing HD using positive coping methods

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Cognitive categories that predict time to diagnosis in Huntington disease

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Biochemical compound could be marker for Huntington disease progression

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Detection of changes decades before diagnosis may prove important for clinical trials

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Those closer to estimated HD diagnosis more likely to take antidepressants

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A more well-rounded approach to HD diagnosis could be effective, useful in clinical trials

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Calculation estimates research participants' years to clinical diagnosis from study entry

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