Links

The following links are a select colleciton of online information about Huntington disease. 

 

University of Iowa Huntington's Disease Society of America Center of Excellence

One of 21 COEs in the United States. PREDICT-HD is centrally coordinated at the UI HDSA COE.

 

HD Organizations

 

Huntington's Disease Society of America

Provides vital support, information and educational services to improve the lives of those affected by HD. Includes state and local chapters.

 

Huntington Society of Canada

A national network of volunteers and professionals united in the fight against HD.

 

Huntington's Disease Association

A UK charity which supports people affected by HD.

 

HD Community

 

Huntington's Disease Lighthouse Families

A website for HD families, by HD families, providing first-hand accounts of of HD family life, information about advocacy efforts and events, and explaining the latest research findings so HD families can become proactive in their care, have hope for the future and make good decisions in the present.

 

Huntington's Disease Lighthouse Families Message Board

A message board serving as a 24 hour-a-day, 7-day-a-week support group meeting for families impacted by HD.

 

UI Huntington's Disease Society of America Center of Excellence Facebook Fan Page

Online community featuring information about events, photos, articles about HD in the news, updates about research studies and calls to action and advocacy.

 

Huntington's Disease Youth Organization (HDYO)

HDYO provides support for young people around the world impacted by HD. Its website contains content written by young people, for young people on a variety of topics important to kids, teens, young adults and parents.

 

Young People Affected by Huntington's Disease

A chapter of the Huntington Society of Canada that provides a community and support network for youth affected by HD.

 

HDSA National Youth Alliance

This group for young people offers support, encouragement, friendship and hope that they won't have to battle this disease anymore when they are older.

 

 

HD Research

 

HD Buzz

A site founded by Dr. Ed Wild and Dr. Jeff Carroll dedicated to the rapid dissemination of high-quality HD research news to the global community. Scientists and clinicians write easy-to-understand articles in plain language about the latest HD research from around the globe.


For a full listing of PREDICT-HD's research collaborators, click here

 

External links provide additional information about HD and related topics. PREDICT-HD cannot attest to the accuracy of information provided by these links.