Data sharing

Thank you for your interest in data collected as part of the PREDICT-HD study. Information on current available datasets is available at the following websites:

Study staff is currently engaged in curation for eventual sharing of phenotypic, genotypic, metabolomic, proteomic and imaging data. This includes full anonymization and defacing of raw images, and mapping all variables to common data elements. This final study-wide data set will be made available to dbGaP in summer of 2016. 

 

Currently, we are not able to fulfill requests to prepare and share datasets beyond what are already available via dbGaP and the NINDS Repository.